To be or Not to be is the real question











{January 20, 2009}   Fan-freaking-tastic!

Okay, so I wanted to give everyone an update on my health issues.. so here goes..

The doctor discovered that I have a severe iron deficiency meaning I am severely anemic. He is pretty confident that this is the cause of my thrombocythemia and said with each progressive CBC done, my platelet counts have been coming down although in very minute increments. He put me on an iron therapy and I am to repeat the CBC in one month, and then follow-up in 3 months with him. At that time, he will let me know how things are progressing, but was quite confident that getting my iron counts up would reverse the thrombocythemia along with the symptoms it has caused.. before any permanent damage is caused. I am very excited about this.. it has given me my HOPE back. My mom says that the prayers and good thoughts must be working, and I am definitely inclined to believe this as well, but still keeping my fingers crossed. I am still supposed to keep de-stressed right now since obviously the platelets are still quite elevated.. I don’t want a heart attack or stroke.

However, the CT scan came back with good results except for one tiny mass discovered on my right ovary. I suffer from polycystic ovaries (PCOS), but the doctor informed me that the mass discovered on my right ovary is not a cyst, that it is definitely a tumor. That being said, he informed me the tumor is less than one centimeter in size, and concurred with the radiologist that at this time, it is benign. He is forwarding the results of the scan to my specialist so he can decide in what direction to proceed. He explained it is the cause of the pains I have been having in my right side, yet doing my best to ignore. I have always refused pain meds for my PCOS because tylenol should be good enough and I don’t want to become like the people I see in the pharmacy all the time.. prescription drug addicts basically.

Some people could see this as another downfall, but I am simply happy and ecstatic. I can live without an ovary.. or two, if necessary.  I cannot live without my blood, regardless, of being accused of being a vampire or zombie due to my pale, ghostly skin coloring LOL. I have been prepared for the female issues for a decade and think God does work in mysterious ways…

:)



The outlook you have is a very positive one. It is one I would have in the same situation. I say go with the flow and see where it leads you. There is no reason/need to worry all it does is bring you (and other down) and you do not need to be feeling like that especially because that will not help you or change anything. Continue to have your issues taking care of by drs and treat your body as best as you can and SMILE vampire or not ;)



ara0062 says:

LOL hehehe.. hey WmWB, haven’t you heard.. pale is the new tan ;) hehehe



Natural Mystic says:

What were/are your symtoms vis a vis the ovary cyst?

What type of pain if any, and where is it located and how long has it gone on?



ara0062 says:

Natural Mystic.. like the nickname by the way..
Basically, the doctor told me that the pain I get in my right side is from the tumor on the ovary, but I thought it was simply a cyst getting ready to slough off. Sometimes, it feels like a tearing pain and other times it feels like a dull ache that radiates out from it. I have polycystic ovaries, that is why I never thought more of it. There have been times in the past where I went to the ER thinking I was having appendicitis only to discover it was the multiple cysts causing the pain, enough that it can keep me doubled over. Basically, I just suffer through it and refuse to take pain meds that some people beg for because I don’t want to become addicted to such things. As for the time period.. the severe pains I have felt in my right side for nearly 10 years now, with my left side very seldom causing me an issue. I know I did not have the tumor as of Oct 2006 because they DID do a CT scan on me thinking I was having appendicits which turned out to be an attack by my gallbladder. When my gallbladder was removed, it was discovered I had endometrial adhesions even on it, as far up as in my chest cavity. From a previous laproscopic procedure, we were aware that it pretty much was ensconced in my intestines, but did not know the tissue itself had traveled so far up my torso.



Natural Mystic says:

I have the same kind of pain but in my LEFT side! That’s what I asked. However, it seems to shoot out into my left butt area and down my thigh a bit and therefore I am under the impression that it could be sciatic nerve. But it seems to originate in the groin area. I also think it may be colon. It’s a kind of dull yet sharp at the same time ethereal but concrete pain. That’s why I can’t tell if it’s nerve, muscle, or what.



ara0062 says:

Several times, when I did go to the doctor or the ER, I was having very serious pains in the groin area as well. I was informed it was the endometriosis actually clamping down on some nerves and parts of my intestines at that time. I remember they actually gave me liquid dicyclomine for it at that time, which is used to relief cramping with the stomach and intestinal tract. It helped, but did not totally relieve the pain. You might check with a doctor that actually specializes in endomtriosis/infertility problems instead of just a regular gynecologists. Sometimes the regular ones are a bit stubborn and won’t admit it could be endometriosis.. at least from some of the experiences a few family members of mine have gone though. Good luck though getting it figured out!



Natural Mystic says:

It’s odd. Many times I feel like a ball of cold air is in my left hip, or a knot, that just under the skin is tender. It feels like this ball of cold air moves around my hip, groin and thigh area. It does seem to be more noticeble approximately a week before my period. It’s always the left side, never the right.

I thought endomitriosis was just pains that women who never had kids get and that it was not serious but just a natural symptom of having not reproduced???



ara0062 says:

No.. the endometriosis is a lot more serious than that. Pre-menstrual pains are normal to a degree as lon as they are very mild, but my doctor tells me severe cramps are in no way normal and have nothing to do with whether one has had children or not. A lot of times, the endometriosis has caused infertility issues, especially if it is diagnosed along with a case of Polycycstic Ovary Syndrome (PCOS). Hmm.. I wonder if what you are describing is actually ovulation. They say not many women can feel it, but I have always been able to.. and according to what my physician told me, I must be a double ovulator because I feel it literally from both ovaries.. usually a week to a week and a half before my period would begin. It is a very weird/strange feeling and there is a specific term for it, but I don’t remember what it is. If I remember what it is, I’ll post it for you.



Natural Mystic says:

You mean we are only supposed to ovulate from one of our two ovaries? Which one? Either/or? If what I’m feeling is simply natural ovulation from my left ovary than that would be a big relief for me.

And yeah, it is usually week and half before period. But I get my period every 21 days so that’s why it feels there’s hardly ever time when the pain is not there.



ara0062 says:

You might want to discuss your periods then with a physician because that is really not that normal. Your physician may want to put you on some sort of birth control medicine to help regulate out your cycles then because having cycles that quickly can lead to blood loss and anemia. I used to have one every 42 days (every 6 weeks), and then one day, it went nuts on me and I started having one for 2 weeks straight, coming off of it a few days, and then right back up. That is part of the reason they keep me in false menopause with birth control medicine currently so I don’t get anemic from it.. although now I am anemic from another as to yet be found source. My birth control medicine is for medical reasons, so I have to take it continuously without the placebo tablets.

From what my doctor explained to me at my last checkup, women usually only ovulate from either one or the other, sometimes alternating, sometimes not. The reason it came up was because of the benign tumor on my right ovary that was discovered with a recent CT scan and the discussion with him of how I was actually a twin, but my mother lost my sibling while we were still in the womb. Most women don’t usually ovulate from both ovaries at the same time. If they do, that it can be a source of fraternal twins.



Natural Mystic says:

Thanks.

I’ve learned more here about the subject than on any medical site.

I read that having a period every 3 to 4 weeks was normal. Don’t know about going on pills. I’m one of those natural freaks. But I will look into alternatives.

Thanks again!



ara0062 says:

You are most welcome. I don’t like pills, I just don’t have a big choice at this time.



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